The Lay Review
A critical component of the Rare Disease Foundation microgrant review process is the evaluation by and feedback from our lay review panel.
The Rare Disease Foundation Lay Reviewers evaluate how well the proposed research is explained in language that the general public would understand. All of our lay reviewers bring with them a wealth of lived experience with regards to rare disease. We rely on this expertise when it comes to evaluating the direct impact of the proposed research on patients and families and the relevance the research has within the rare disease community.
The lay summary is a vital aspect of every microgrant proposal. A clear, organized and thoughtful lay summary written in plain language will increase the likelihood of funding.
Please take the time to review these guidelines and consider the following advice before submitting your lay summary.
Lay Summary Guidelines
- Length – 1 paragraph
- Minimal to no use jargon, acronyms or scientific terms
- Answers the following questions:
- What is the potential impact on patients lives?
- What is the potential impact on the larger rare disease community?
- Why is this research important in the bigger picture?
Lay Summary Advice
- Summarize your research in approximately 25 words and use this as your first sentence
- Use short (20 words or less), direct sentences
- Use the active voice
- The patient was given medicine by the nurse à The nurse gave the patient medicine
- Have someone who is outside your field read your lay summary